Invisible
I used to have colors that burned bright as the sun. People would look at me, and my colors would shimmer off of them; light reflecting light.
People wanted to be around me. I had bounce in my step, and when I stepped I never looked back.
I was not the center of anyone’s attention, but there was attention in my life.
I wanted to be the best, but I did not need everyone else to think I was.
I was going somewhere, and people noticed.
I could fly by the seat of my pants; I mean I could really fly. I thought the sky was the limit, and I wasn’t ready to stop there.
Then one day I fell. And I didn’t shine like I used to. The brightness of my colors did not touch anyone else; I was fading. I was stealing other people’s light.
I was not the center, the periphery, or on the radar, of anyone’s attention.
My colors disappeared until you could see through me, all my life was just background.
The bright blues of the sky and brilliant yellows, oranges, and reds of the sun were gone.
No one looked my way anymore, and if their eyes happened to pass over where I was, they wouldn’t see me. I was invisible.
I stopped looking too.
I could no longer see myself, and my eyes went dark, so that I could not see any light at all.
All that was left was darkness and silence.
Invisibility is lonely.
This is a blog, loosely based, on my experiences with Cushing's Disease; illness, recovery, and what lies between. It is more of a place where I can ramble on about what is on my mind, in the hopes of clearing my mind enough that I might sleep tonight.
Saturday, June 26, 2010
Monday, June 21, 2010
I pray for death
There is a line from Goodwill Hunting, Ben Affleck is talking to Matt Damon, and he says this line: "Every day I come by your house and I pick you up. And we go out. We have a few drinks, and a few laughs, and it's great. But you know what the best part of my day is? For about ten seconds, from when I pull up to the curb and when I get to your door, 'cause I think, maybe I'll get up there and I'll knock on the door and you won't be there. No goodbye. No see you later. No nothing. You just left. I don't know much, but I know that." For me it is one of the best lines in a pretty great film. And every morning, when I wake up, I pray for about ten seconds before I open my eyes, that I am going to open them in paradise. That somehow God finally answered my prayers, found mercy, and I was just gone. No goodbyes. No messy lose ends to tie up. No nothing. But then I hear my dog snore, and see the sun coming through the back window, and I know what is to come. Those ten seconds are the happiest of my day.
I know as soon as I put my feet on the ground I am going to feel pain, feel weakness. I have to live in my world of isolation, with only my thoughts of what a complete failure my life is to keep me company. I count down the minutes until it is time to sleep again, so I can try once more for those ten happy seconds of oblivion, when, still heavy with sleep, I can almost trick myself into believing that this is not my life. Sadly, most nights sleep is elusive, one last jab at the fleeting moments of happiness I have.
I know as soon as I put my feet on the ground I am going to feel pain, feel weakness. I have to live in my world of isolation, with only my thoughts of what a complete failure my life is to keep me company. I count down the minutes until it is time to sleep again, so I can try once more for those ten happy seconds of oblivion, when, still heavy with sleep, I can almost trick myself into believing that this is not my life. Sadly, most nights sleep is elusive, one last jab at the fleeting moments of happiness I have.
Tuesday, June 1, 2010
Fairness, Justice, and Greed: The American Way
I have been having trouble sleeping, and I lie awake at night, and mostly go through everything I have to do during the week, and watch South Park at 1am. But sometimes I think about really deep questions, and last night was one of those nights. I have a friend I have never met. She lives on the other side of the country. But we share the same illness, and through that experience, we have supported each other, shared in victories, and lifted each other up in prayer through the tough times. I found out recently that this friend, who has spent years battling a chronic illness, has now been diagnosed with a very serious cancer. She is 26, and she needs a hysterectomy.
So last night I lay there, and thought about how unfair life is. Once you have had brain surgery, and spent years of your life fighting for some semblance of normalcy, shouldn't you get a pass for the rest of your life. Like a "Get out of Jail Free" card in monopoly. You should not be 26, and facing another life-threatening illness, or having to deal with all the emotions of never being able to have children. I thought about how some people intentionally (although maybe not always consciously), cause the destruction in their own lives; alcoholics, drug addicts, convicts. And why does it seem that these people get chance, after chance to make their lives right and start again? Why are there so many couples who desperately want children, and can provide them a good home, but just can't conceive; when on the opposite end of the spectrum there are so many children living in homes of neglect and abuse? I once worked with a couple that killed their 1 year old daughter, and almost killed their 3 year old son, and they plea bargained and did less than 5 years for her murder. Where was the justice there? I know God says that "justice" and "vengeance" are His, but from where I am sitting the scales are tipped way in the favor of injustice!
My friend I mentioned before needs a surgery to save her life, and insurance will not pay for it. I understand this predicament, having been through a similar situation. I just don't understand how a corporation can met out life and death. How can they weigh someone's life based on a bottom line? I don't have all the answers. I know healthcare is expensive, but I don't think the expense should also be human lives.
I want to believe that in our core, most of us are good and decent people. But I also think that it is somehow in the nature of people to be greedy and selfish, and that until we learn to fight against that nature, there really is no fairness or justice in our world.
So last night I lay there, and thought about how unfair life is. Once you have had brain surgery, and spent years of your life fighting for some semblance of normalcy, shouldn't you get a pass for the rest of your life. Like a "Get out of Jail Free" card in monopoly. You should not be 26, and facing another life-threatening illness, or having to deal with all the emotions of never being able to have children. I thought about how some people intentionally (although maybe not always consciously), cause the destruction in their own lives; alcoholics, drug addicts, convicts. And why does it seem that these people get chance, after chance to make their lives right and start again? Why are there so many couples who desperately want children, and can provide them a good home, but just can't conceive; when on the opposite end of the spectrum there are so many children living in homes of neglect and abuse? I once worked with a couple that killed their 1 year old daughter, and almost killed their 3 year old son, and they plea bargained and did less than 5 years for her murder. Where was the justice there? I know God says that "justice" and "vengeance" are His, but from where I am sitting the scales are tipped way in the favor of injustice!
My friend I mentioned before needs a surgery to save her life, and insurance will not pay for it. I understand this predicament, having been through a similar situation. I just don't understand how a corporation can met out life and death. How can they weigh someone's life based on a bottom line? I don't have all the answers. I know healthcare is expensive, but I don't think the expense should also be human lives.
I want to believe that in our core, most of us are good and decent people. But I also think that it is somehow in the nature of people to be greedy and selfish, and that until we learn to fight against that nature, there really is no fairness or justice in our world.
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